CONVID-19

Your Hand In Mine

July 19 2020

Rules. Rules. Rules. We recently needed to move our dad to a senior’s facility with a higher level of care for him. With Covid there are rules, so many rules. Even coming from one residence with no covid to another without the virus, and having had several tests himself – he still had to be isolated in his room for fourteen days. I had to believe that when that non-isolation isolation (we were thankfully still allowed to visit) would be over Dad truly would be in a good place. He’s now on a memory care ward but please please don’t jump to conclusions! Don’t sigh and say dismissively, “Oh, okay, that’s that then.” My dad has dementia – but I know this about the ‘D word’ – you can’t decide what that means for him in particular, or compare it to someone else you know. Yesterday I listened to a poignant podcast about an elderly woman with dementia, and how she told a daughter she didn’t initially recognize, “This is who I am now. Accept this version of myself. Know I love you still.”

In the years since my dad’s had dementia I’ve made irratic frustrated attempts to learn more about the disease, and what I’ve learned most from that is that the way a person’s mind leads them down the path of dementia is unique for every soul. My family has had to learn what sometimes frightening path my dad’s mind has taken him along, as well as all the ways he is wonderfully still the same.

The kind doctor that first diagnosed him told him, Dementia doesn’t mean you’re crazy. It just means your memory isn’t working the way it did before.

My dad is still my dad. He is still honest and good, (though sometimes cranky), with charming wry humour. ‘How long have you been on oxygen?’ – a doctor recently asked. “Same as you,” he said, “since I was born.” And when I try to cool off his hot apartment, instead of telling me he is cold, he asks me if I can find him an ice pick. A nurse brings him his medication and he offers to split it with her.

That humour is evidence of a sharp funny mind. But the same mind doesn’t see the boundaries of his own changed body. Why can’t he get his drivers license back?, he wonders despite being on oxygen, and off-balance even with a walker. It’s on his bucket list to ride a horse again, he tells me and he’d like to get a two bedroom house with a stove to have people over and cook say, a few eggs.

People warn us how sad it will be when he doesn’t recognize us. I can’t predict, but I don’t think that’s going to happen. He knows exactly who his five children are, not always where we live now, but who we are is locked in. He doesn’t know he’s called one of us a dozen times in half an hour. Or that he asked us what time we’ll arrive two minutes ago, or he already called to say Happy Birthday to the brother whose birthday he amazingly remembers. Still if we can get the conversation past why he can’t move into his own place, and honestly sometimes we can’t, we can still engage in conversations about the times that as he says, were a life time ago.

My parents marriage was the union of two people who believed not just til death do us part, but in loving each other completely until then. Their strengths shone through their union but for the last four years our mom had to assume care for the husband who had previously done the heavy lifting for her. Fourteen months ago mom confided to me, “Dads worried about what will happen to him if something happens to me.” I tried to be funny, ‘We are too Mom, so you better stick around.” A month latter, the day after their 66th wedding anniversary, to our childish surprise – she unexpectedly died.

He managed in the assisted living facility we’d helped them choose for a year without her – his guiding light. He’s frail, and weak of body, but not of mind in the way too many think. Yes, he has dementia but he can tell a good story, and set you to laughing with his wit.

Funny what memories we hold onto. Being the middle of five kids it would have been rare to have my dad’s attention all to myself. But I remember going to a department store once – just him and I. I have a vivid memory of how before entering the big store he took my small hand in his big strong one. I honestly remember being so happy to have my dad, holding my hand, just the two of us out together.

What I wish I’d told my mom that day fourteen months ago when she, I realized, was the one worried about him managing without her, was this, “It would be ok Mom. We’ll take care of him.” What I didn’t know as a kid was that my turn to take his hand and make him feel safe would come. It’s not easy to do that always, but listen hard Dad – we’re trying.

You Couldn’t Make This Up

Is it still the pandemic ? Yep it is. Get out of bed and and try to find my vitamin C. Fail but spot the Vics Vapour rub. Put some under my nose. I’m not in need of vapour rub but the scent makes me feel safe, as if my mom put it there. Go back to bed. Thought hubby was asleep but he’s reading. He reads/sleeps/ reads all night. Don’t look at my phone. Don’t look at my phone. Don’t look at my phone.

Decide I need a to-do list. Fall back to sleep preparing a mental one. Wait to hear adult son making coffee. Adult son is finally sleeping in (or lying in bed making a mental to-do list.) I wonder if point number one for him is to remind himself to not isolate with parents at family cottage in the future. Make the coffee myself.

Eat toast and peanut butter. Watch grown daughter – also likely wondering how we all decided isolation as a partial family group at our lakehouse was a good idea – watch her preparing totally healthy yogurt and fruit and nuts for breakfast. Add honey to my coffee and eat 12 blueberries. Wander out to the deserted beach to talk to my dad in his senior’s residence. He has dementia and I’ve already decided it’s morally ok in this situation to be less than honest with him about how long this forced separation might go on.

Adult daughter is already yakking away to her sister on not deserted beach. Try to take photo of six beautiful geese taking flight in unison from the lake.
We hear a man’s voice and wave at our neighbour – also talking to someone on his phone on this decidedly ‘not’ deserted beach. Follow daughter, who is talking to her big sister, home. Phone my own big sister. Talk about what we always talk about – pandemic or not – how to make our elderly dad happy. Phone my other sister – she is out walking too. Lots of walking. Talk more about dad – who is beyond miserable but can still give us a chuckle with his wry (the guy invented wry) humour. Return to find husband having loud work phone calls in his new kitchen office. None of us have talked on the phone this much in forever. Like since texting was invented.

Decide I can contribute to cooking, though adult kids have taken over the kitchen. We are running low on many (ok I’m lying) a few items. Argue with husband and adult son whether it is necessary to make trip to grocery store yet. Husband wants boat gas – he has a strong need to social distance in a dingy in the middle of the lake. We offer to get the gas with other items.

Daughter and I drive to town – store has new rules posted (everyone has new rules) only one member of family allowed in. Keep your distance. No reuseable bags. (Hah – I figured they were germ infested – feel better for consistently forgetting mine). Daughter says she’ll risk the grocery shopping. She’s the original germ-aphob. I’m ok with that.

We need some healthcare items (don’t ask) from the pharmacy across the road. I put on my gloves and wait for the only customer to exit and cautiously go in. Grab the goods and spot the hair colour kits – eureka!! My hair has been my hairdresser’s responsibility for years. Which one of the ageless beauties on the boxes do I hope to resemble? I pick the happiest looking one. The clerk tells me how safe and clean the store is, holding up the cleaner and reading from the label the zillion types of bacteria it will destroy. It’s the sort of nasty germ killer I wouldn’t want in my house. I ask if I can buy some – for my house. (No way José. It’s for store use only.)

The clerk confirms that there has been a run on hair colour. She tells me everyone says there will be a lot of babies born in nine months. She thinks there will be a lot of divorces. My credit card ‘tap’ doesn’t work. I have to key in my payment card which makes me exit the store feeling paranoid. I get in my car, touching the steering wheel with possibly (unlikely) contaminated gloves. Damn. Put hand sanitizer on an old Kleenex from before the virus time which would have been too yucky to use in that other life. I wipe off the steering wheel. Take off gloves. Decide to wipe off my favourite little leather wallet. Shit. Hand sanitizer isn’t the freind of the dye on my wallet. Wipe off bank card. Daughter gets in the car as I’m trying to decide if I should get out and wipe off the outside car door handle? I’ve become a crazy person. I try for a laugh from my daughter with the story of my sanitizing. She gives me a half grin and I realize she loves that it is socially ok to wear protective gear now. We drive home talking about how dating just got really messed up and much trickier. We wonder if the dating ap Bumble will add a new category for your dates germ awareness level. At home we wash our hands to an off key duet of Twinkle Twinkle Little Star . We unpack the groceries quickly so the survivalist son and husband won’t realize we felt we needed these chocolate chips and feta cheese to survive. (Honestly commenters/trolls – these were not the items that sent us out into the germy world.) We haven’t seen the bearded man’s video of how to clean groceries yet.

My small yoga group is doing Zoom yoga. I can only get the audio. Our amazing and zen instructor offers to be very descriptive so I can follow without the visual. Turns out that I’m not an auditory learner – I find myself twisted like a pretzel in positions defying downward dog. Big yoga fail.


We drift into the far corners of the house or property, the younger generation distancing themselves further with ear buds on. But then usually around four o’clock we find ourselves together again – shaking our heads at this strange life. We cook clam linguini and gather for dinner. We talk about the virus news we’ve seen all day on our phones. Talk about movies. Talk about movies about viruses.Hubby falls asleep rewatching The Lord of the Rings. I feel the need to watch You’ve Got Mail. Instead I watch the bearded man’s video about how meticulously I should have cleaned and unpacked my groceries. Damn.

Go to bed early – fall asleep making that darn to-do list. Decide that I’m-going to plant seeds in little jars in the house. I Decide this will become a movement along with all the bread making that must be going on. Fall asleep wondering how I will look as a redhead?

Sent from my iPhone

Taking Care of Grampa in All This

Dear Mom, I started writing you these letters months after you died on a day I felt I just had to talk to you. I was here at the lake place, where I am again – but who could ever have imagined I’d be writing you this one. I still can’t believe it all – we were isolating here with three of the adult kids, and one girlfriend. I still don’t know what I believe Mom – whether you are somewhere watching all of this or not. But it helps to write.

I have to say right off that I never ever would have left Dad in the city during this corona virus crisis if I was still allowed to see him. Even though there are no cases in his senior’s home they aren’t allowing anyone to visit at all. And we all came up here to the lake because a few of us had traveled out of the country and had to be isolated. (We came before there was any advice not to and would return if any of us weren’t well). Still Mom I lay in bed at night aching over whether somehow we could have managed his care in one of our homes. But he’s just so weak right now. (Though not weak spirited.) With his CHF it’s almost a struggle for him to walk from his couch to the washroom. I’ve been convinced that the safest place for him is right where he is, where he’s health needs are being met. Oh my Mom, we’re so not alone with our worry over a senior separated from loved ones. And I think Dad ‘gets’ it. He watches that damn news station all day long. All of us smile about how we’re giving him the same advise when we talk to him, trying to get him to switch the news off when we tell him to change channels (that TV remote is not his friend), to move around the apartment more, open his blinds to the sunny skies, and no Dad you don’t have to stay up til midnight just because you always did.

We’re talking to him Mom. Lots. And lots. I rack my brain trying to think of what special treats our wonderful helpers who live across from his residence could drop off for him to have in there in his apartment. Dad’s such a social creature and I know dementia has made that more so by 100 percent. He loved to just get out and about. You know how going out for coffee was a daily event with him and his brothers. Before all this happened and after he lost you Mom – his North Star – we’d set his life up so almost every afternoon one of us visited or took him out – and without you the evenings were so long and lonely we hired those angels across the road to visit every night. Of course they can’t go in either. You know how Dad keeps a straight face but can be such a funny guy, with old time expressions he likes to use. When we call he says loudly, “Thanks for the call.” When we leave he tells us, “Don’t be a stranger.” And he likes to say, “The latchkey is always out,” and the oddest one, “Don’t take any wooden nickels”. He’s frantic and lonely but still funny. I talked to him for a bit just now, and I told him I’ll call you again soon. He said, ” I’ll be here.” Funny Daddy.

Anyway Mom – we’re not alone or special in this – having the head of our clan kept away from us. Your generation, they’ve seen the shit show the world can come up against. Dad talks about when polio hit his little town when he was a kid and how kids couldn’t leave the yard. You had the dirty thirties depression and he saw his older brother and Dad prepare to go to freaking war. And I remember you showing me your food rationing cards. As they are saying on social media – in comparison we’re just being asked to stay home.

I’ll share a funny one. Our helpers across the street called and asked Dad if he could drop anything off at the front desk. Dad requested apple pie and milk. When I asked him if the staff brought it up to him, he said, “Yeah, I don’t know why I got that.” When I told him he was kinda amused. Who knows what he might throw out as a request next. Still my heart aches for Daddy being kept from us for everyone’s own good. We’re doing our best Mom, to take care of him, the way he cared so hard for us, like we told you we would. Love you Mom. Forever and ever. Write back? xoxo

(If you would like to read more of my writing follow my blog or you can read my book Text Me, Love Mom : Two Girls, Two Boys, One Empty Nest – https://www.amazon.ca/Text-Me-Love-Mom-Girls/dp/1771800712